Impact of family-centered care in families with children with intellectual disability: A systematic review.

Background: Family-Centered Care (FCC) is an approach to healthcare planning, delivery and evaluation, based on beneficial partnerships between health professionals, patients and families. FCC may be particularly relevant for families with children with intellectual disability (ID), given their needs of continuum care. Objective: To identify which components of the FCC are practiced and which health outcomes are considered effective in families with children with ID. Method: A systematic review guided by the PRISMA STATEMENT 2020 approach and the STROBE reporting guidelines was performed on specific databases through the EBSCOhost Web platform: MEDLINE with Full Text, CINAHL PLUS with Full Text, Academic Search Complete and Psychology and Behavioral Sciences Collection. Peer-reviewed articles published in English or Portuguese languages from 2018 to September 2023 were retrieved. Methodological quality was established using the Quality Assessment Tool for Observational, Cohort and Cross-Sectional Studies - NHLBI, NIH. Results: Ten studies met the eligibility criteria and were synthetized. The results revealed nine components, reflecting the way FCC was developed: shared decision-making; family education; respect for culture; family engagement; recognition of the family's needs, characteristics and interests; specialized care support; social and emotional support; family functionality; and family seen as a unit. The health outcomes demonstrate effective gains in improving children's health through family satisfaction with health services. Also achieved psychological and social benefits, with improved family well-being and quality of life, favoring family empowerment. Conclusions: The evidence suggests that FCC components involves an effective partnership between the family and health professionals as the main key in developing care plans, as well as the experience that the family unit brings to the delivery of care. FCC approach include all family members as decision-makers, providing emotional, physical and instrumental levels of support. Health outcomes emerged in three strands; for children with ID, families and health services.

Protetores de ouvido e olhos na promoção do sono em cuidados intensivos / Ear and eye protectors in the promotion of sleep in intensive care

Objetivo: analisar a contribuição dos protetores auriculares e das máscaras oculares para a promoção do sono do doente admitido em cuidados intensivos. Método: revisão integrativa da literatura que conduziu à pesquisa no motor de busca EBSCOHost, nas bases de dados CINAHL Complete, MEDLINE Complete, Cochrane Central Register of Controlled Trials e Cochrane Database of Systematic Reviews, para a identificação de estudos publicados entre 2014 e 2018. Foram selecionados quatro ensaios controlados randomizados. Esta revisão considerou a recomendação PRISMA. Os níveis de evidência foram assegurados pelos níveis de evidência do The Joanna Briggs Institute e a qualidade metodológica foi analisada com recurso ao Clinical Appraisal Skills Programme. Resultados: todos os artigos selecionados apontam para os benefícios da utilização desses dispositivos para a promoção da qualidade do sono do doente em cuidados intensivos. Conclusão: pela segurança e benefícios associados a esses dispositivos, sugere-se a sua utilização para a promoção da qualidade do sono do doente em cuidados intensivos. No entanto, pela escassez de estudos sobre o tema e pelas limitações dos estudos analisados, sugere-se a realização de mais estudos quantitativos com amostras mais representativas.(AU)